HEALTHCARE PROFESSIONALS AND SCIENTIFIC RESEARCHERS

HEALTH CARE PROFESSIONALS AND SCIENTIFIC RESEARCHERS
TITLE	DESCRIPTION
American Academy of Pediatrics	Provides online access to AAP’s recommendations, research findings, and policy statements. Provides helpful tips and health information for parents and providers on all child health topics.
American College of Cardiology Foundation	While not specific to congenital cardiac defects, this site provides information on Clinical Statements and Guidelines; media, journal and news articles; as well as professional training programs; and advocacy topics. It contains links to Medical Journals Online, Medical Associations, Organizations and Agencies, and the Global Cardiac Network.
HuGE Net	HuGE Net represents the collaboration of individuals and organizations from diverse backgrounds who are committed to the development and dissemination of population-based human genome epidemiologic information. The web site provides information about the HuGE Net and peer-reviewed synopses of epidemiologic aspects of human genes, prevalence of allelic variants in different populations, population based disease risk information, gene-environment interaction, and quantitative data on genetic tests and services.
Institute for Child Health Policy	The Institute for Child Health Policy, a statewide Institution of Florida's State University System, was established in October 1986. Given the substantial changes in both the financing and organization attendant to the growth of managed health care, the Institute for Child Health Policy has focused its attention on children in managed care with special emphasis on children with special health care needs. Issues of access, utilization, cost, quality and family involvement are principal areas of interest for our policy/program development, health services research and evaluation programs.
March of Dimes Genetics & Your Practice	March of Dimes Genetics & Your Practice is an interactive program that helps providers learn the latest on genetics and related genetic technologies.
National Center for Biotechnology Information--Online Mendelian Inheritance in Man (OMIM)	This database is a catalog of human genes and genetic conditions and contains textual information, pictures, and reference information. It also contains copious links to NCBI's Entrez database of MEDLINE articles and sequence information.
National Society of Genetic Counselors	The National Society of Genetic Counselors (NSGC) is the leading voice, authority and advocate for the genetic counseling profession. The "What is?" section of their web site explains the role of genetic counselors and the “resource link” lists genetic counselors nationwide and internationally, for those needing a referral.
Organization for Teratology Information Services (OTIS)	This site offers information about exposures to possible harmful substances during pregnancy. Contains a list of state contacts for teratology information, fact sheets, special projects, and links.
Teratology Society	The Teratology Society web site provides information on teratology, membership information, and links to numerous birth defects sites. Also has a teratology discussion forum.